Datasets

Phaeochromocytoma and Paraganglioma

Scope

The dataset has been developed for the pathology reporting of adrenalectomy/partial adrenalectomy specimens for phaeochromocytoma, other excisions for paragangliomas and biopsies of related specimens.

Sarcoma, lymphoma and metastasis to the adrenal medulla are not covered in this dataset. Neuroblastoma and ganglioneuroblastoma are covered in a separate ICCR dataset. Adrenal cortical tumours are dealt with in a separate ICCR dataset.

Further details of the scope of this dataset are outlined within the reporting guide.

Publication History

2nd edition – November 2025. Updated following the publication of the 2025 World Health Organization (WHO) Classification of Endocrine and Neuroendocrine Tumours, 5th edition.

  • To reference this dataset please use the following citation: de Krijger RR, Asa SL, Kimura N, Moonim MT, Oudijk L, Sadow PM. Thompson LDR, Tischler AS, Valk GD, Lax SF, Gill AJ (2025). Phaeochromocytoma and Paraganglioma Histopathology Reporting Guide. 2nd edition. International Collaboration on Cancer Reporting; Sydney, Australia. ISBN: 978-1-922324-70-2.

1st edition – December 2019

  • To reference this dataset please use the following citation: Tischler A, Asa S, Clifton-Bligh R, de Krijger R, Kimura N, Komminoth P, Lack E, Lenders J, Lloyd R, Papathomas T, Sadow P, Thompson L, Gill A (2019). Phaeochromocytoma and Paraganglioma Histopathology Reporting Guide. 1st edition. International Collaboration on Cancer Reporting; Sydney, Australia. ISBN: 978-1-925687-28-6.
  • Read more on the Phaeochromocytoma and paraganglioma dataset from the journal article written by the dataset authors: Data set for the reporting of pheochromocytoma and paraganglioma: explanations and recommendations of the guidelines from the International Collaboration on Cancer Reporting. Thompson LDR, Gill AJ, Asa SL, Clifton-Bligh RJ, de Krijger RR, Kimura N, Komminoth P, Lack EE, Lenders JWM, Lloyd RV, Papathomas TG, Sadow PM, Tischler AS. Hum Pathol. 2021 Apr;110:83-97. doi: 10.1016/j.humpath.2020.04.012. Epub 2020 May 11.

Expert Committee

The 2nd edition of the dataset for Phaeochromocytoma and paraganglioma was developed by the following international team:

  • Chair – Ronald de Krijger, The Netherlands
  • Series Champion – Anthony Gill, Australia
  • ICCR representative – Sigurd Lax, Austria

Domain experts:

  • Sylvia Asa, USA
  • Noriko Kimura, Japan
  • Mufaddal Moonim, UK
  • Lindsay Oudijk, The Netherlands
  • Peter Sadow, USA
  • Lester Thompson, USA
  • Arthur Tischler, USA
  • Gerlof Valk, The Netherlands

Authors of the previous edition of this dataset are available here.

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