Datasets available for comment

Your feedback is invited on the following draft ICCR Datasets for urinary tract carcinoma:

Carcinoma of the bladder -  cystectomy, cystoprostatectomy and diverticulectomy specimen
The dataset has been developed for the reporting of cystectomy, cystoprostatectomy or diverticulectomy specimens from patients with carcinoma of the bladder. The protocol applies to primary carcinomas (non-invasive and invasive), with or without associated epithelial lesions. Urothelial tumours diagnosed as papilloma or papillary urothelial neoplasm of low malignant potential are not carcinomas and this dataset does not apply to those diagnoses. Transurethral resection and biopsy specimens are dealt with in a separate dataset.
 
Carcinoma of the renal pelvis and ureter - nephroureterectomy and ureterectomy specimen
The dataset has been developed for the reporting of resection specimens from patients with primary carcinoma of the ureter and renal pelvis. The protocol applies to carcinomas (non-invasive and invasive), with or without associated epithelial lesions. Urothelial tumours diagnosed as papilloma or papillary urothelial neoplasm of low malignant potential are not carcinomas and this dataset does not apply to those diagnoses. Transurethral resection and biopsy specimens are dealt with in a separate dataset. For bilateral tumours, complete a separate dataset for each.
 
Carcinoma of the urethra - urethrectomy specimen
The dataset has been developed for the reporting of resection specimens from patients with carcinoma of the urethra. The protocol applies to primary carcinomas (non-invasive and invasive), with or without associated epithelial lesions. Urothelial tumours diagnosed as papilloma or papillary urothelial neoplasm of low malignant potential are not carcinomas and this dataset does not apply to those diagnoses. Transurethral resection and biopsy specimens are dealt with in a separate dataset. Carcinomas arising in the distal penile urethra (glans region) are included in the Carcinoma of the penis and distal urethra dataset and are not to be reported using this dataset. This dataset is to be used for adenocarcinoma arising in the accessory glands of the urethra (Skene, Littre, Cowper).
 
Urinary tract carcinoma - transurethral resection and biopsy specimen
The dataset has been developed for the reporting of transurethral resection (TUR) specimens and biopsies of the bladder, urethra, ureter and renal pelvis. If biopsies are from different locations then a separate dataset should be completed for each tumour site. The protocol applies to primary carcinomas (non-invasive and invasive), with or without associated epithelial lesions. Urothelial tumours diagnosed as papilloma or papillary urothelial neoplasm of low malignant potential are not carcinomas and this dataset does not apply to those diagnoses. The most distal portion of the penile urethra in the region of the glans penis is not included in this dataset; it is covered in the Carcinoma of the penis and distal urethra dataset. Biopsy of the kidney is dealt with in a separate dataset. 

These datasets are available for comment until 9th February 2018.

To provide comment on the draft datasets - please complete a Cancer Dataset Review Form”, using the instructions below.

Important information for Apple Mac users - to retain formatting and to enable submission via email you should open the Cancer Dataset Review Form in Adobe Reader or Adobe Acrobat.

Specific Information on the Cancer Dataset Review Form
  • In each form you can submit up to 5 comments. If you wish to make more than 5 comments, another form must be completed.
  • With your comments or suggested changes, please be as specific as possible, including any relevant background information and supporting evidence.
  • Tick whether your feedback pertains to the hyperlinked guide or the bookmarked guide.  Tick both if the information is pertinent to both.
  • Ensure you complete the cancer dataset field so that we know which cancer dataset you are referring to.
  • Name and email are the minimum contact details requirements but additional information is desirable.
  • Documents can be attached to the form e.g. a specific piece of evidence or a data table. Just attach in the relevant field by going to the Document menu and choosing ‘Attach a file’. Alternately you can attach a separate file to the email submission.
  • The form is submitted by pressing the “Submit by Email” button and emailed to Datasets@iccr-cancer.org.
  • If you do not want to complete the form in one go you can save it to your PC. Within the form just select “Save As” from the File menu.
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All feedback will be reviewed by the relevant expert committee, updates made; all responses to feedback and the final version will be posted to this website. If you have any questions regarding the above process please email Datasets@iccr-cancer.org.

Check the development schedule on 'Upcoming Datasets' for an indication of the next datasets to be ready for public comment.